Dear Family and
Friends,
A year ago, I
wrote to you, asking for your support for my first Boston Marathon.
With your help, I was able to raise nearly $3,000 towards basic
cancer research. All told, the entire Dana Farber Marathon Challenge
team gave an outstanding $1.5 million to the Claudia Adams Barr
Program, enabling ten Barr Investigators to focus on cancer research
over the coming year.
The Boston Marathon
itself was an amazing experience! Walking up to the starting line,
I was incredibly nervous, as I had spent the past four months straight
in physical therapy with knee problems and had not run more than
18 miles in one “sitting.” But my confidence grew as
kids asked for our autographs at Hopkinton. Spectators would actually
duck under the ropes and run with you on the street, just to shake
your hand for running for Dana Farber. And those wonderful BC guys
offered me countless beers and burgers as I traveled through Cleveland
Circle. By all means, it was not a smooth race. My infamous bad
knee gave out in the hills in Newton. But my father taped me back
together at mile 20 and sent me on my not-so-merry way. However,
as I crossed the finish line some 5 hours and 40 minutes after I
started my adventure, I knew I’d be back for more in 1999.
What I did not
know that day is how drastically one young girl would change my
life and my goals in the months to come. In early February, I was
accepted into the Patient Partner Program and paired up with Brittany
Lambert, a wonderful 13-year old girl from Duxbury with myelodsyplasia,
a rare blood disorder which leads to leukemia. Brittany, a cat lover,
was a rare breed of cat herself with a wonderful ability to enjoy
life fully and dream about tomorrow, even though she was fully versed
in the intricacies of her illness. From the onset, I was told that
she was one of the sickest children in the program, but that she
was one of the best. When told Brittany was my partner, I always
received a warm, knowing smile from doctors, nurses and pyscho-soc
workers, usually followed by “you’re lucky – she’s
special.”
And special she
was. At Project Adventure, a Saturday full of games geared towards
getting to know each other, we compared notes and discovered a mutual
adoration of hockey, second only to that of a particular former
Bruin, Adam Oates, whom she had met, much to my envy! The night
before the marathon, she and her family joined us at our pasta party,
where Brittany told me it was okay if I couldn’t finish the
run, just as long as I tried. The next day she waited in the cold
for hours for me to run by Kenmore Square – we later laughed
at my rather inaccurate and greatly under-exaggerated guesstimate
of my time. At a Red Sox game this past summer, we played devil’s
advocate, cheering on Mo Vaughn as those around us collectively
booed his at-bats. And finally at a DFMC barbecue this fall, she
gave me a lesson on the finer points of bargaining for Beanie Babies
at flea markets.
Once, I had asked
Brittany to explain her illness, and with an impish grin, she rolled
her eyes and finished, “well, it’s not like I’m
going to die tomorrow.” Because she had lived her short life
so fully, I was unprepared for the phone call I received in late
October. Brittany died on October 22, 1998. A few days later, her
family asked me to come with them to visit her middle school. Her
classmates had covered her locker and those surrounding from the
floor well up onto the ceiling with cards, flowers, signs, photographs,
stuffed animals….there wasn’t a free space to be seen.
It was an amazing, heartbreaking site. The message was clear: even
those who did not know her personally had been touched by her beauty,
her humor and, most of all, her courage.
This year, my
goal is to raise $10,000 in memory of Brittany. While this is a
rather intimidating number, I hope that you consider contributing
even the smallest amount. 100% of your donation funds Barr Program
researchers at Dana Farber, ensuring novel approaches in basic cancer
research. While a cure was not found in time for Brittany, I hope
that her memory will live on as researchers help other young cancer
victims.
Thank you in
advance for your support and encouragement. Stay tuned for my post-Marathon
update!
--Heather
|